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still waiting (Reply to this comment)
by carylsuzanne
your story sounds identical to mine . . . Same symptoms . . . i am still waiting . . .
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Jul 06 '08
6:45 pm PDT
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multiple sclerosis (Reply to this comment)
by mdacey
Thank you Lisa J for sharing your story. I am possibly "on my way to MS"...yikes...how scary...OK...I can do all things through Christ who strengthens me....even this, Lord?! Oh my gosh...I do have a Dawson's finger, etc. so....any encouragement would be greatly appreciated. I will pray for you. Again, thank you for writing. I, too, am a writer and an artist so I hope I can continue.
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Feb 06 '07
9:06 am PST
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Stay well (Reply to this comment)
by noangels
I just recently entered my second big attack, prompting me to see what people have written about MS in writer's corner. Thank you for sharing. Please stay well and have a happy, healthy New Year!
~Jamilynn
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Jan 08 '07
1:37 pm PST
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Re: Thanks for sharing your story (Reply to this comment)
by Lisa_J
Thanks for the comment! I appreciate the support. There is on-going research and there has definitely been developments. I **hope** that a cure is found for this and other autoimmune diseases. Thanks again for the comment and hugs~~~ Lisa :)
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Sep 30 '04
3:31 am PDT
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Re: Waiting is the hardest part! (Reply to this comment)
by Lisa_J
Thanks for the comment Char! Hugs~~ Lisa
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Sep 30 '04
3:29 am PDT
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Thanks for sharing your story (Reply to this comment)
by brooklynsmum
(((Lisa))), I know it's been awhile since you wrote this, but I just stumbled onto it today. I know too well the devestation of MS. My uncle was diagnosed in 1967 and the year that I was born was the year his arms and legs abandoned him altogether. I don't remember him without his wheelchair. My husband's cousin was diagnosed a few years ago and my former roommate also was living with MS. Fortunately, great progress has been made in diagnosis and treatment and I'm hoping that a cure is in the near future.
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Sep 29 '04
3:57 pm PDT
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Waiting is the hardest part! (Reply to this comment)
by char.mike
I have SCA or spinocerebellar ataxia. MS is also one of many types of this dx. My type is hereditary while MS is usually sporatic but can also be hereditary. I will be keeping you in my thoughts and hope all goes well with you. Smiles and hugs, Char
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Nov 20 '02
4:45 pm PST
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Re: Struck a nerve. (Reply to this comment)
by Lisa_J
Hi Ann,
You are a dear woman, and I admire your sweet disposition. I have placed you in my prayer chain, and you are within my thoughts. If I can help in any way.... please email. I highly recommend finding an online support system.... that can be as a lighthouse amidst the storm.
Love, Blessings, Hugs~~~
Lisa
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Aug 10 '02
2:37 pm PDT
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Thank you (Reply to this comment)
by Sundrop
Thank you for sharing your amazing story.
I am continually reminded of all I am grateful for in my life, but I often forget that my "health" should rank right up there at the top.
You just reminded me. All the best to you and your family.
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Jul 20 '02
11:30 am PDT
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Struck a nerve. (Reply to this comment)
by justicea
I was flabbergasted when I read your review. I am beginning the journey to find out if I have MS. I have had symptoms for years but dismissed them..maybe I have the flu...maybe I need to lose weight...maybe I am a lazy person....maybe I am a heavy sleeper (why my side numbs out at night)..etc. But recently, I had to stop and concentrate when I went up and down the stairs, even then I missed the last step a couple of times, also my right side numbs out almost every night, I am drained all the time, my headaches have gotten worse, my co-ordination is off..... Episodes occurred about every 6 months and I seemed to fully recover during that time. The last two episodes were only 2.5 months apart and I didn't fully recover between episodes. I have suffered from six miscarriages with the last miscarriage occurring in May. I also had no idea that pregnancy can advance MS.
Some of these symptoms began 8 years ago but I can no longer ignore them. I was shocked and devastated when the doctor talked about MS or a tumor on the spine or brain. So now begins the long, slow process of getting a diagnosis and treatment. It doesn't help that I was just diagnosed with diabetes and one of my doctors wants me to consider a hysterectomy.
My hope will also be in my faith, my husband and my four children.
Thank you so much for sharing. You have substantially eased my anxiety. You have lots of guts, Liss.
Ann
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Jul 08 '02
1:17 am PDT
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Re: Keep the faith! (Reply to this comment)
by Lisa_J
Thank you Kim! Faith is the top factor when working with situations such as this. I appreciate your visit and the comments. Hugs~ Lisa_J
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Jul 06 '02
4:22 pm PDT
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Re: (Lisa) (Reply to this comment)
by Lisa_J
Hi MJ~
Thank you for the wonderful advice that you offer, and for the supportive message. Wow, you truly know the road of unknown so many face when arriving toward a diagnosis. Sorry to hear of your mom (and others who dealt with this pre-meds that are now available). Makes me wonder how many have it/had it and went undiagnosed.
I 'hear' the caution you offer. Early into my adventure we were warned about the many *cough* cures that would be presented to MS patients.
The Team of Doctors I see practice within an actual MS approved facility (by the NMSS). This is a good attribute, and allows me to receive care from educated staff.
Thank you - again - for the words of encouragement and for the information.
Hugs and Thanks~ Lisa_J
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Jul 06 '02
4:21 pm PDT
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Re: Oh Lisa... (Reply to this comment)
by Lisa_J
Andrea,
I appreciate the kindness you extend in this comment section, and at other places within epinions/off-site. Your kind demeanor embraces many, thank you. Also - I appreciate knowing that people like you are part of this site that I like contributing to.
Thanks and Hugs~ Lisa_J
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Jul 06 '02
4:13 pm PDT
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Re: hugs Lisa (Reply to this comment)
by Lisa_J
Cyndi,
I appreciate what you share, and am sad to learn you have to deal with Lupus. The glimmer of hope is the possibility in the future for a cure. We can hang onto that ... right? My sincere blessings to you and your family, and my encouraging spirit I send your way. Thank you for the visit and for the kind words. Hugs~ Lisa_J
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Jul 06 '02
4:06 pm PDT
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Re: Thanks... (Reply to this comment)
by Lisa_J
Arathi ~
I appreciate the prayers and the kind sentiments you shared. Thank you~ Lisa_J
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Jul 06 '02
4:03 pm PDT
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Re: Sad... (Reply to this comment)
by Lisa_J
Hi,
Thank you for visiting. I am sorry you ventured into the sad one first. It is actually my hope that others will gain a ray of hope for facing what life deals to them. I look forward to reading epinions by you, and appreciate the supportive comment.
Thanks~
Lisa_J
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Jul 06 '02
4:01 pm PDT
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Re: Lisa (Reply to this comment)
by Lisa_J
Carol & Kelley,
Thank you for stopping by with the supportive comments. They're appreciated. Hugs~ Lisa_J
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Jul 06 '02
3:58 pm PDT
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Keep the faith! (Reply to this comment)
by Magick1
Thanks for sharing what is a very tender/hard topic!
You present the information so very well, and it truly is helpful to many who don't understand or just don't know the trials and tribulations that one faces when trying to get a diagnosis!
Thanks!
Kim
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Jul 05 '02
8:57 pm PDT
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(Lisa) (Reply to this comment)
by mjfrombuffalo
My mother was diagnosed back in 1972, before MRIs and when MS became the disease you diagnosed when you'd ruled out everything else. They know so much more now, especially about steroid and beta-seron and other treatments.
I worked for the WNY/NWPA chapter of the National Multiple Sclerosis Society a few years ago. I'm glad you mentioned them at the end of your essay since they are a wonderful source of information for those diagnosed, their families, friend, and other concerned individuals. Be careful of "medical" advice people give you and check with your local MS Chapter before trying anything - they have details of all the research on treatments and their efficacy. And watch out for "sound-alike" groups like the "MS Association" - they are NOT the NMSS! The chapters in most areas also offer one-on-one, family, and group counseling/support for people at all stages and with all variations of the disease. I hope you've checked them out because sometimes you have to vent to people who REALLY understand.
Thank you for a beautiful essay that really encompasses what goes on during the "is-it-or-isn't-it" time.
mj
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Jul 05 '02
7:14 pm PDT
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Oh Lisa... (Reply to this comment)
by pluckyduck
....sweetheart, I had no idea.
I'm really not finding any words. I'm sitting here weeping with you, not because your diagnosis is tragic for a young woman (which it is), but because your strength and beauty is so great. What a beautiful piece you have written.
Love to you and your family,
Andrea
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Jul 05 '02
5:29 pm PDT
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hugs Lisa (Reply to this comment)
by CyndiA
This is an important review to share. Tks for putting your story up to help others. I have a sister condition, lupus, and it is a real shock to discover that a body is not doing what it should. I hope we see progress in finding out about the autoimmune diseases. In the meantime, hugs to you. You've got a lot of brain and enough heart to make you hero to me.
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Jul 03 '02
4:12 pm PDT
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Thanks... (Reply to this comment)
by arathi
for sharing this with us. You will be in my thoughts and prayers.
My very best to you.
Arathi
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Jul 03 '02
1:23 pm PDT
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Sad... (Reply to this comment)
by thed_man
the first review of yours I read has to be depressing? That's life I guess...my thoughts are with you and let your faith carry you through tough times. You sound very strong.
take care
thed_man
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Jul 02 '02
10:41 pm PDT
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Lisa (Reply to this comment)
by lkvanvoorhis
Thanks so much for sharing your story. A very good friend was recently diagnosed - I will send her the link to this. I'll keep you and your family in my prayers.
Kelley
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Jun 29 '02
7:06 pm PDT
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Lisa~ (Reply to this comment)
by Lark729_89
You and I have something in common.
Thank you for being brave enough to share your story with others.
Carol
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Jun 28 '02
7:04 pm PDT
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Re: You are so . . . (Reply to this comment)
by Lisa_J
Oh wow, you just brought a teardrop to the corner of my eye. As it flows down my cheek, I feel a tinge in my heart, thus reminding me of the wonderful people I am so thankful for at epinions.
Hugs~ Lisa_J
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Jun 28 '02
11:50 am PDT
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You are so . . . (Reply to this comment)
by gungian
. . . correct that we only have today.
And today I am thankful that we have you to read.
Nicely done.
My prayers are with you.
Write On!
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Jun 28 '02
10:28 am PDT
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Re: :-) (Reply to this comment)
by Lisa_J
Hi Jan!
Thanks for the comments. I have read information about the treatment you mention, and discussed it my docs. They don't feel it is the option for me at this time. However, I am on an experimental drug - in addition to the shots and 4 other meds.
Hugs~
Lisa_J
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Jun 27 '02
1:17 pm PDT
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Re: Oh Lisa . . . (Reply to this comment)
by Lisa_J
Melissa,
Thank you for your kind sentiments. I know that you have medical issues, that you deal with also, I empathize and extend my kudo's for your bravery.
Thanks again~
Lisa_J
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Jun 27 '02
1:15 pm PDT
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:-) (Reply to this comment)
by jankp
How difficult it must have been for you and you have made it through so beautifully. Thank you for sharing and possibly helping someone else in their struggles. I know the research looks good and will remind you that 4-AP is available now at compound pharmacies and helpful to many MS warriors.
Jan
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Jun 26 '02
10:03 pm PDT
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