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congratulations! (Reply to this comment)
by jankp
What a great essay. I'm so glad that she's doing well now. I don't even know what zoloft is, but you're lucky she didn't die. Hope she's growing normally.
Jan
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Nov 18 '06
10:17 pm PST
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:) (Reply to this comment)
by Barefooter
Glad to hear that your daughter is doing well now!
Karen
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May 30 '06
6:36 pm PDT
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She's beautiful! (Reply to this comment)
by michiman1
Barbara,
My wife and I comment often on how lucky we were - our children were healthy from day one. She spent many years working at the PICU at Mott Children's hospital in Ann Arbor as an RN. I can relate to much of your story after hearing her experiences over the years.
She's lucky to be born into a loving family - enjoy her. Every minute with them is precious, my baby has just finished her 2nd year of college which is a testament to how quick time passes.
Mark
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May 29 '06
10:23 am PDT
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Re: Hello (Reply to this comment)
by LILvoyce
You are so welcome. Everything is still going great with the baby. She is ALL smiles. I am in heaven each time she smiles and coo's at me..lol.
Things are not going so well with Nana. We can't seem to get anywhere with her doctors. All they want to do is give her stronger drugs. I am so afraid she is going to fall. She is getting worse and worse. She is up to 100mg of Seroquel 2-3 times per day, in addition to her Ativan, and zoloft. I will have to take a moment and write about what is going on. It is so bad.
I hope things will calm down for you as well. Take care and let me know how things turn out for you. Best Wishes.
-barbara
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May 28 '06
5:03 pm PDT
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Re: Your strength (Reply to this comment)
by LILvoyce
Honestly, you would be surprised on what you will deal with when there is no choice. I don't honestly know how I did it. I am so glad everything is going well now.
Thanks for reading.
-barbara
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May 28 '06
4:44 pm PDT
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Hello (Reply to this comment)
by misc_el
Thank you so much for sharing this. What a blessing. It mean so so very much to me that you even took a second out to share pictures with me and email. You're so amazing.
Thank you for being a friend Barbara. Thank you for being you.
Give the baby kisses for me.
I hope all is going ok with Nanna.
Sorry took so long to get to reading. I haven't been here in awhile. Still busy with Dad stuff.
XOXO
Elaine
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May 26 '06
6:33 am PDT
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Your strength (Reply to this comment)
by AliventiAsylum
of body and spirit for all that you have been through is to be commended. I don't know if I would hold up so well.
I am glad your baby is home with you. The experience just in the RMH sounds like it was one of those defining moments in life. May God bless you and your little girl.
Patti
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May 24 '06
4:15 am PDT
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Congrats... (Reply to this comment)
by kevlog
and so glad to hear she's doing well!
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May 23 '06
6:39 pm PDT
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I am so sorry that you (Reply to this comment)
by PalmerLD
and your family had to go through all of this, but I am so happy that it all has turned out so well.
God bless you all and most especially, your precious little girl.
Take care,
Margaret
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May 23 '06
5:32 am PDT
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Thank you so much for sharing your story (Reply to this comment)
by mizgnomer
I was so happy to see your beautiful daughter's photos. Thank you for sharing your story. I'm definitely inspired to do more for the Ronald McDonald House charity. I cannot begin to imagine what it was like to go through that.
Your original OBGYN sounds just awful, by the way. That's just unforgivable.
Thank you again for sharing this, and my God continue to bless you and your family.
MizGnomer
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May 22 '06
9:41 pm PDT
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Re: From... (Reply to this comment)
by LILvoyce
Thank you... Good things come to those who wait. When that day came, I was on top of the world.
-barbara
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May 22 '06
7:27 am PDT
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From... (Reply to this comment)
by cubmomma
...one Mom who had a baby in the NICU to another, I'm so glad your baby is doing well now. One of the hardest things to do is to be released from the hospital after delivery and leave without your baby. Every hour was either an up or a down. You have so much courage to write this. I can only imagine how difficult it was for you.
~~Sherri
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May 22 '06
1:13 am PDT
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Re: I'm happy for the good news (Reply to this comment)
by LILvoyce
Thanks!
-barbara
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May 20 '06
9:30 pm PDT
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Re: Our son... (Reply to this comment)
by LILvoyce
Thanks for the comments. Any time spent in the NICU is difficult. These babies sure do come out with boxing gloves on. They are tough.
-barbara
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May 20 '06
9:29 pm PDT
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I'm happy for the good news (Reply to this comment)
by pmills1210
I hope things stay good. Thank you for sharing.
Sincerely, Pat
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May 20 '06
4:46 am PDT
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Our son... (Reply to this comment)
by mmcphee
spent two 1/2 weeks in the NICU before he could come. It was a very difficult time for everyone. I'm glad your daughter is home and doing well - she is beautiful. Congratulations!
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May 19 '06
6:43 pm PDT
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RMH (Reply to this comment)
by LILvoyce
I can't say enough about the Ronald McDonald House. It felt like a home away from home. My kids loved it. There was a tv room, computer room, play yard, and several activities provided for the kids. We were glad that there was something for them to do and did not have to sit around and worry so much.
Easter was so nice. We were not prepared to have a big outing like we usually do. In fact it was the last thing we were worried about. They provided the kids staying at RMH with Easter baskets, and an Easter egg hunt. They were soooo good to us. If I ever donate to a cause, this would be one I would consider.
-barbara
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May 19 '06
5:22 pm PDT
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Re: ...... (Reply to this comment)
by LILvoyce
Yes we are OK. I found this piece difficult to write at first. I finally got around to it. We are so happy she is doing well now. My thoughts will be with all the folks at the RMH who are not home with their children yet.
Thanks for reading!
-barbara
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May 19 '06
5:02 pm PDT
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...... (Reply to this comment)
by moonsista
Barbara,
I'm so sorry that you had to go through this. I left a comment on another review you wrote earlier in the week and acted like everything was OK.."glad you're doing well"...I had no idea and I'm so sorry. Your baby girl is gorgeous and you are so lucky to have her. My heart is aching for that poor woman who had to leave without her baby. That was so hard to read. Thank you for sharing this. There is a Ronald McDonald House here in Cleveland and I know several people who have stayed there while their children were sick. It's such a nice place.
You and your family will be in my thoughts and prayers. I will never forget this piece you wrote.
Stacey
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May 19 '06
4:05 pm PDT
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Re: OMG (Reply to this comment)
by LILvoyce
Your going in for a Thyroid Cancer exam? Do you have a goiter? If so, don't stress the test. Most lumps are non-cancerous. My lump was just the funny odd ball that was. Thyroid Cancer numbers are starting to increase, but the actual cancer is still pretty rare. It is a pretty manageable cancer providing you keep up with your appointments, and don't let your health insurance delay to opportunity to give you a speedy care plan. Good luck, and let me know what happens.
-barbara
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May 19 '06
8:54 am PDT
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Re: OMG (Reply to this comment)
by LILvoyce
You know what? The students were amazing. If I had a choice to do it over again, I would of had them again. The students were more thorough than my original OBGYN. Yes, she was a high risk Obgyn. Not only that, but because I allowed them to be in the room, they now know what to listen for when a baby can't breath. It was very difficult in the first few seconds of birth to determine the "grunting" noise. My allowing them to observe and assist the doctor in delivery has given them an edge on their learning.
The meconium that she had swallowed would have happened either way. I think my original OBGYN passed me off because she knew I was high risk, took the harmful meds to long, and the baby was overdue. I have a feeling she had a huntch about the delivery being difficult and was trying to pass the buck. Maybe I am wrong but that is how I see it.
I think my case is that I had a doc during the pregnancy that thought she knew it all, but allowed many careless mistakes. I do blame myself because I probably should have gotten a second opinion. I feel she should have taken the baby earlier, and not have allowed her to get to be so big.
Thanks for reading!
barbara
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May 19 '06
8:44 am PDT
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What an incredible story! (Reply to this comment)
by whalewatcher
My heart goes out to you and your family, it must have taken such strength to endure it all.
Best wishes to you and your beautiful baby, may she grow stronger each day and have a healthy, happy life!
Claudia
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May 19 '06
8:19 am PDT
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OMG (Reply to this comment)
by deenaf
I have SO much to say about this story! First of all, congrats to you on making it through this and for your baby's arrival.
Secondly, your story is not filled with blame which is soooooooo easy for people to do. I don't agree that you should blame yourself but your story telling is of facts, not anger and blame and for that I applaud you.
The only thing that strikes me as terribly odd is that knowing you were a special case, possibly high risk, no?, (no thyroid, on AD meds, scheduled C) that they'd allow the students to be involved. Must have been excruciatingly frustrating I guess.
Lastly, you had thyroid cancer? Ironically I am going for that exam today. I am a bit frightened and I see you are a strong story and I should probably not be afraid of anything.
Good luck to you and your family. You are strong to share your story with such grace.
Deena
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May 19 '06
4:24 am PDT
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Re: ... (Reply to this comment)
by LILvoyce
I was put on anti-depressants after my thyroid was removed due to Thyroid Cancer. They felt that my hormones were off and the anti-depressants would help with that. I asked my OBGN who was a critical care specialist if it was ok to take them when I first went to her. She insisted I should take them and prescribed them to me. I would have stopped taking them, if I would have known there could have been even the slightest problem. I trusted her, that is where I went wrong. You can take them up until the last trimester, in which she should have known that, she was the "specialist."
Also, the meconium that she swallowed, and the fact that she was 10.6 pounds meant that she was probably overdue. This is another error on her part. Most babies don't experience this unless they go past their due date.
I blame myself for trusting her.
-barbara
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May 18 '06
11:53 pm PDT
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