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Darn! (Reply to this comment)
by Yzerman
I had meant to watch that last night, but didn't get home in time. I did my Practicum in college at our local Autisic school. It was very interesting work.
Good review!
Diane
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Jul 22 '00
10:24 am PDT
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Yours is a . . . (Reply to this comment)
by gungian
. . . moving and informative opinion.
I still like to play with a streak of sunshine. It is comforting somehow.
Write On!
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Jul 22 '00
10:34 am PDT
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This is (Reply to this comment)
by Lucky47
a very moving and in depth explanation of Sesory Integration Dysfunction. Thank you Bonnie for all the experiences you have shared with all of us. When I was a little girl(last century) :) I used to love sitting in the middle of the sun ray that came into our living room. Then I'd watch it for awhile and imagine little fairies inside it. :) God Bless and I sure will buy the Newsweek when it comes out. It takes very special "parents" to become involved in every moment of their children's wonders. Everyone should learn about Autism and what it involves.
Thanks again Bonnie
Carol ~
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Jul 22 '00
1:31 pm PDT
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Good review, but... (Reply to this comment)
by DnDn4kidz
to someone who did not watch 20/20 last night, or someone who has never heard of Sensory Integration Dysfunction, this might not be easy to understand. I know that SID has been a fairly new 'diagnoses', but maybe you could include a little bit of information about what it is, and how it's being diagnosed?
Just to make sure I wasn't 'judging to harshly', I asked a friend who did not watch 20/20 last night to read this review and tell me what her thoughts were. The first thing she asked me, was what DIS is~just a thought~
Desiree
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Jul 22 '00
4:39 pm PDT
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thank you for sharing such an important topic. (Reply to this comment)
by Dunkjam
Bonnie, I wanted to ask you if you already have one child with autism, do you have a higher chance of your next child having it also? This is such a new topic that needs much discussion and tv shows to make the public more aware of it. Thank you for always answering my questions. Take care, Eva
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Jul 22 '00
4:57 pm PDT
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I have a good... (Reply to this comment)
by Dianete
friend who has a child with S.I.D. and she felt good about seeing some info. aired on this subject. It did touch on some of what her son experiences. She has had a lot of trouble getting help in this area! She is informing herself and doing great things with him! He has made progress! Thanks for the info.
Diane
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Jul 22 '00
5:32 pm PDT
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Re: Good review, but... (Reply to this comment)
by bonniesayers
I did an update and was going to do what is Sensory Integration Dysnfunction but I really thought the examples were self explanatory. Sensory = Senses, Integration = to make into whole, dysfunction - not working right= layman terms their senses are not working as should be together. They are not processing normally.
This section is entitled Children with Disabilities and many that have been written in this area mention their child has Autism or ADHD, and I rarely see an explanation on each one. I would assume they are rated accordingly as well.
The information I added was from what I received from our Occupational Therapist. The original text of the editorial is in my own words. Thanks for asking and this is to benefit those who would seek information in the section titled Children with Disabilities I would think that a family member or someone who knows of disabilities would know what this entails. Bonnie
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Jul 22 '00
5:46 pm PDT
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Very Interesting! (Reply to this comment)
by Remind
Thanks for sharing that!
Zo
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Jul 22 '00
6:16 pm PDT
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Great and informative review Bonnie! (Reply to this comment)
by LynnHR
I've been hoping you'd write one like this! I'm adding you to my WOT!
Hugs to you and your wonderfully amazing kids!
Lynn
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Jul 22 '00
7:22 pm PDT
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Just Saw On TV (Reply to this comment)
by melliott03
I just saw a program about this last night. It was very interesting. I enjoyed your review.
Melanie
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Jul 22 '00
8:48 pm PDT
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Sensory Integration (Reply to this comment)
by jramick
Unfortunately some teachers take this disorder lightly. My son's OCT explained it to me like this "To people without this disorder, you can usually sit in a chair and listen to the teacher and focus on what is going on around you and what the teacher is saying. To kids with this disorder, they feel the chair is too uncomfortable, they do not like how it feels to have one leg touch the other while sitting, the light seems too bright, their body feels uncomfortable, their clothes do not feel right, etc, etc." They can not concentrate on their environment, only what stimulates their senses which is usually in a negative manner. Thanks for enlightening others with your review!
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Jul 22 '00
9:52 pm PDT
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Great INfo (Reply to this comment)
by EquineLdy
Great review and great info. It must be very taxing on a parent dealing with these issues. I have a slight CP child and can't imagine anything else. Hope all is well for you, thanks for sharing. Debbie
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Jul 22 '00
9:53 pm PDT
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Re: Great INfo (Reply to this comment)
by sparkospunky
I read your review and was very moved. I pretty uninformed on the subject and this taught me a lot.
Your sons are really fortunate to have a mother as sensitive as you. I wish you and your family nothing but the best.
Mike
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Jul 23 '00
6:40 am PDT
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The usually misunderstood SI is clarified here. (Reply to this comment)
by jsaunt
Unfortunately many people do misunderstand or minimize the importance of problems with SI. I've learned a lot about SI from the OTs I work with and when you understand it and just think about it, the way we integrate all of our sensory input has an effect on everything we do every minute of every day. Like many things in my field (speech therapy) we take our ability to handle sensory input for granted. I found your post to be very informative. And it's obvious not only that the professionals you've dealt with taught you well, but also that you are a very involved and caring parent.
Leslie
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Jul 23 '00
6:59 am PDT
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Re: Good review, but... (Reply to this comment)
by gollygumdrops
. . I did not see the show, but I understood enough from the review, although you may have tidied it up after first posting it looks complete and very informative as well as touching to me.
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Jul 23 '00
9:39 am PDT
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:) (Reply to this comment)
by disartain
Good review Bonnie. It must be very hard for you and the rest of your family.
Diane
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Jul 25 '00
8:52 pm PDT
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My older daughter... (Reply to this comment)
by drmomentum
has S.I.D. SHe was not delayed in language, but has motor control problems and is extremely sensitive to sounds and scents. I am realizing now, that I must have also had these problems as a child. It helps to understand her when I know that she is pretty much just like me, but moreso.
-JP
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Jul 27 '00
7:26 pm PDT
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Personally.... (Reply to this comment)
by KendraMakani
I think the only handicap your children have are all these rediculous titles on normal childhood reactions to things. NOTHING you said in this review talked about handicaps! So one of your sons is sensitve to his socks... so are a lot of kids, that's normal. So one of your sons likes to clean his face a lot... that's normal. I think you need to stop DISABLING your children by looking for disablities, and recognize they are normal healthy children.. like all the other kids.
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Jul 28 '00
4:01 pm PDT
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Re: Personally.... (Reply to this comment)
by bonniesayers
Excuse me but both my sons have been diagnosed with Autism by the school district, psychologist, speech and occupational therapist and neurologist to name a few. They are both in Special Education and receive Social Security.
This is a fact and what this editorial on was Sensory Integration Disorder, which is a real issue as well.
There are links, etc as well. I am not sure what you were looking for when you showed up at this editorial and hope you find what that is you are searching for. Bonnie
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Jul 28 '00
6:32 pm PDT
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Very good article (Reply to this comment)
by CrochetNYC
You wrote a very informative article, which I read with interest. Thank you for informing me about this disability.
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Aug 27 '00
7:03 pm PDT
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You are doing a great job of advocating for your children (Reply to this comment)
by BedrockTime
I would just like to commend you for your excellent writing about your children. You did a wonderful job of explain SID, and teaching us how it affects your life. I am a soon-to-be OT who spent the summer working with children with autism. Your children will benefit from the extra time & energy you are expending learning about their unique situations; they will also greatly benefit from what you do to educate others.
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Sep 30 '00
10:03 pm PDT
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I hope you see this comment! (Reply to this comment)
by cathyjones
I know you wrote this a couple of years ago, but since I am new, I just found it. Excellent source of info! I just wanted to add, that even in the school system, occupational therapists require a prescription from a physician in most states. Each state has different laws. I am an OT and commend you on educating all of us. I know have a 28 month old with what I suspect, a very mild for of SID. I have had people tell me that SI theory is a bunch of crap. As a professional and a parent, it is difficult to explain to non-believers. Everyone has issues with sensory integration in some form, however, the majority of us can deal with it effectively. You are doing a fantastic job in advocating for your children!
Cathy
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Feb 26 '02
5:52 am PST
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Great resource (Reply to this comment)
by ms_pookie
Two other great resources for sensory integration dysfunction:
1) The Out-of-Sync-Child: Recognizing and Coping with Sensory Integration Dysfunction
and
2) The Out-of-Sync Child Has Fun: Activities for Kids with Sensory Integration Dysfunction
Both books are written by Carol Stock Kranowitz.
The first book is more of an overview of what SI dysfunction is ... the second book speaks more of things and activities ... both books are great; I've used lots of ideas during my treatment sessions.
:)
Pooks
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Dec 31 '03
10:26 pm PST
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Re: Great resource (Reply to this comment)
by bonniesayers
I mentioned those two books in my parachute review I did the other day. I bought them both thru walmart.com and sold them on ebay when I was done reading.
Thanks for the read and comment.
Happy New Year
Bonnie
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Jan 01 '04
4:10 pm PST
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Not Normal, But Not All Bad. (Reply to this comment)
by Versius
Good Review. I particularly enjoy the personal stories; the love of a parent shines through in this one.
I do have a few personal points to make and hope that you don't mind my using your review as a forum for this.
Those diagnosed with these, or some of these, traits are certainly not "normal," but these things are "disorders" primarily because of existing social conventions. I was diagnosed with many things while growing up; the final diagnosis being Aspergers, which is very similar to the traits that you are referring to. What I believe (many of )these children need is simply acceptance and to be allowed a certain amount of freedom in interpreting the world around us. Just because what we see is not what you see is not to say that it is wrong. Certainly, this is not to say that "special" help in many areas is not a good thing; it absolutely is. Just be careful not to tell the child that it is a "deformity," a form of "retardation" or even the common "disabled" and don't stop them from exploring their own world. For me, the things that are often considered "strange" are the only ways that I have to focus. Most of the time we come out okay or better with a little help from the world (but not by being overly protected or coddled).
One more note: many of those who have "language problems" have more of a social interaction problem when using language, but have an excellent grasp of the language as a whole. Some have advanced vocabularies. Some don't. None of these makes them less (or for that matter more) intelligent as some may assume.
Just my personal opinions of course.
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Feb 05 '04
2:30 pm PST
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My son also had those issues... (Reply to this comment)
by CindiLou
He is now 17 and a lot of his sensory problems are better. We can now brush his hair and do the day to day things that were such a challenge. He also loves to sit in the sun spot in the house. His other favorite thing is to play with a shoestring. On top of the sensory issues from his autism, he has seizures and MR. He is making gains though, and we think doing quite well.
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Mar 23 '08
7:17 am PDT
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Re: My son also had those issues... (Reply to this comment)
by bonniesayers
Thanks for the read and comment. My son turns 12 at the end of June and his thing now is a tape measurer he likes to play with. At least the newspaper and fingerprints are all done with and that was for a long time and then we had floor time therapy and it stopped.
Bonnie
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Mar 27 '08
8:20 pm PDT
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