My name is Sue and I have a 11 month old son, Justin. He is my life. I had a daughter who passed away in '96. She was 18 months old and had Spinal Muscular Atrophy I. Losing her has made me have a different outlook on life. It just breaks my heart when I hear another story of child abuse or abandonment. My son is my miracle baby, he is SMA FREE!!! I am probably overprotective of him, but who wouldn't be. My daughter was my life and I miss her very much, but my son is my life too. My family is very important to me. You can visit Amanda's webpage to learn more about SMA and to see her pictures and read her story.
